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27th Mar 2019
Alder Hey Children’s NHS Foundation Trust has been recognised by Muscular Dystrophy UK for providing outstanding care for people with muscle-wasting conditions.
The Trust was awarded Centre of Clinical Excellence status by the charity, alongside 16 other centres across the UK. The awards recognise excellence across a range of criteria, including the care received by patients, and help to drive up the standards of clinical support for people with muscle-wasting conditions.
Rob Burley, Director of Campaigns, Care and Support at Muscular Dystrophy UK, said:
“We would like to congratulate Alder Hey, which has deservedly been awarded Centre of Clinical Excellence status. Alder Hey provides a comprehensive service for people with muscle-wasting conditions and promotes best practice, ensuring patients have access to the best possible healthcare near where they live. Improved clinical care means faster access to treatments and potential cures.
“As the leading charity improving standards in muscle centres, we want to make sure everyone living with a muscle-wasting condition gets excellent care. We will continue to work with Alder Hey and other centres to ensure this ambition is realised.”
In the UK, 70,000 people have a rare or ultra-rare muscle-wasting condition. With just over one in every 1,000 people affected, many health professionals may never come across anyone with a muscle-wasting condition or know much about them.
The Centres of Excellence awards review began in 2012 and takes place every three years. It involves a rigorous assessment of services by experts, with a panel of health professionals and patient representatives developing the criteria for the awards. Patients’ views were also gathered as part of the review process.
Dr Stefan Spinty, Consultant Paediatric Neurologist at Alder Hey said; “We are delighted to once again be awarded “Neuromuscular Centre of Clinical excellence” by Muscular Dystrophy UK following a rigorous audit process. At Alder Hey, we see around 550 children and young people and their families are under the care of Alder Hey with this rare and complex condition. We provide them with the highest standards of specialist care, while increasing awareness of the condition and continuing to develop new treatments.”
For more information about the work of Muscular Dystrophy UK, please contact the Muscular Dystrophy UK press office on 020 7803 2887 or email@example.com
Alder Hey Children's Charity