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29th Sep 2020
Six month old Edward was diagnosed with a complex heart condition whilst he was still in the womb.
He first came to Alder Hey when he was just a few days old with a condition called Double outlet right ventricle, Ventricular septal defect and severe pulmonary stenosis. Edward had turned blue as his blood flow to the lungs was severely restricted due to the condition. He was on medications to keep the small tube and mimic the foetal circulation. After that a transcatheter stent was inserted so that his medication could be stopped and he could be sent home until he had a full repair done at six months old.
Tetralogy of Fallot (DORV) is a birth defect that affects normal blood flow through the heart. It happens when a baby's heart does not form correctly as the baby grows and develops in the mother's womb during pregnancy. It is a combination of four congenital abnormalities. The four defects include a ventricular septal defect (VSD), pulmonary valve stenosis, a misplaced aorta and a thickened right ventricular wall (right ventricular hypertrophy).
Edward’s temporary catheter was fitted by three of our fantastic interventional cardiologists at Alder Hey, Dr Arul Narayanan , Dr Salim Jivanji and Dr Sokleng Kang. An interventionist performs key-hole surgery to avoid open heart surgery where possible. This greatly reduces the risk of complications, as well as scarring meaning future surgeries are easier to perform. Edward was then able to have a full repair done by Dr Ram Dhannapuneni six months later.
Baby Edward is now back home with his family in the Isle of Man and is recovering well.
Mum Rachel said "I just wanted to pass on all our thanks to the consultants and staff on ward 1C and ICU for all their care and support and amazing skill. Our little boy Eddie is recovering so well from his open heart surgery and we're hugely thankful to everyone who has cared for us all along the way, getting us back home to the Isle of Man last night, after just two weeks from surgery. A huge thank you."
Consultant in paediatric and adult congenital cardiac interventions, Dr. Arul Narayanan said “Edward may need further procedures in the future but he will be able to lead a completely normal life. This is the reason why we do what we do and why we love doing it.”
Alder Hey Children's Charity