Our dedicated Patient and Public Engagement Team ensures that our young people have a voice and are given all the information they need about clinical studies they are, or would like to be, involved in.
We have extensive experience in engaging and involving children, young people and families in the design and conduct of clinical trials and health research.
The NIHR Children’s Specialty is hosted at Alder Hey and they have dedicated staff who look after patients and families involved in research. They have set up a Young Person’s Advisory Group (YPAG) to work in partnership with researchers to design and develop studies that meet the needs of children and young people.
Membership of YPAG is open to anyone between the ages of 8 and 18 years old. Members of the group either have some knowledge of taking medication, are involved in a clinical trial, have experience of using hospital services, or have a personal ambition to study medicine. For further details of the group and how to get involved visit the Generation R website.
If your child is involved in clinical studies at Alder Hey you can join our Parent, Carer Research Forum. To find out more contact [email protected]