Paediatric Cardiac Nurse Specialist Service

Paediatric Cardiac Nurse Specialist Service

What is the Paediatric Cardiac Nurse Specialist Service?

It is a designated team of eight senior paediatric cardiac nurses. Their common goal is to provide ongoing emotional support, information and practical advice for children and teenagers with a heart condition and their families.

The Paediatric Cardiac Nurse Specialist Team input starts at diagnosis of the condition.  This can be either before or after birth development and carries on to teenage years (transition service) and transfer to adult services.

What kinds of support can the Paediatric Cardiac Nurse Specialist Service provide?

  • A telephone advice line available from 08.00am-16.30pm Monday - Friday (excluding bank holidays).
  • Education on heart conditions and interventions used to treat / manage them.
  • Support for children and their families at point of diagnosis.
  • Information about national and local support groups.
  • A link with other children and  families who have had similar experiences.
  • Lead preadmission clinics to prepare families for cardiac surgery and cardiac catheter procedures.
  • Assist families, where possible, using  charitable resources to help with hospital expenses during a hospital stay.
  • Support and education  during your hospital stay.
  • Advice and guidance on lifestyle issues.
  • Advice and guidance to schools.
  • Management of patients on Warfarin and run advice and dosing service for families that self - test their INR at home.
  • Advice, guidance and support with feeding issues/concerns, using Cardiac Feeding Clinic input when appropriate.
  • Support to empower teenagers with cardiac conditions through our Young Person’s Clinic.
  • Support teenagers when making the transition into adult services.
  • Provide support with bereavement.
  • Support, information giving and counselling service to antenatal families.
  • Liaison with the Manchester Cardiac Nurse Specialist Team to help with an equitable service across the Northwest.

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Our Cardiac Nurse Specialist Team

  • Helen Walker (Cardiac Specialist Nurse Lead)
  • Amanda Haworth (Cardiac Nurse Specialist)
  • Gill McBurney (Cardiac Nurse Specialist)
  • Michelle McLaren (Cardiac Nurse Specialist)
  • Marie Murphy (Cardiac Nurse Specialist)
  • Pat Coyle (Cardiac Nurse Specialist)
  • Pamela Grimward (Cardiac Nurse Sepcialist)
  • Katie Darnell (Cardiac Nurse Specialist)

Who can make a referral to the  Paediatric Cardiac Nurse Specialist Service?

We will accept referrals from parents, extended family members, ward staff, GPs, Health Visitors, School Nurses, Community Nurses and Teachers.
 
Any family of a child 0-18 years old who has a congenital heart condition and is under the care of the Paediatric Cardiologists at Alder Hey Children’s NHS Foundation Trust can access the service.

Contact Details

You can contact our advice line on:
 
0151 252 5291, or via Switch board 0151 252 4811 and ask for Bleep 107.

Monday to Friday 08.00am-16.30pm.
 
Please note that our advice line has a voice mail service. When leaving a voicemail please speak clearly and slowly and leave your child’s name, Alder Hey number, date of birth and your contact number.
 
Should you require out of hours advice please contact the Ward 1C telephone:  0151 252 5418.


Alder Hey Children's Charity
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